RESOURCES FOR CAREGIVERS OF BRAIN TUMOR PATIENTS
Provided and reviewed by health care specialists at UCSF Medical Center
American Brain Tumor Association
Provides caregiving information and support, including a PDF of the UCSF Orientation to Caregiving Handbook at this website.
Cancer Support Community
Caregivers can get support and information at this website.
Cancer Resource Center at the UCSF Helen Diller Family Comprehensive Cancer Center
Information about our Caregiver Peer Support Program can be found at this website.
Elder Care Locator — U.S. Administration on Aging
Helpful information about long-term care planning and available benefits to seniors and the disabled at www.eldercare.gov.
Employment Development Department State of California — PFL Information
Information regarding California's Paid Family Leave program can be found at this website.
Family Caregiver Alliance — National Center on Caregiving
Non-profit agency dedicated to supporting caregivers. Provides support and education as well as information on respite care with educational literature available on various caregiver topics. Information can be found at www.caregiver.org.
Click here for their practical tools and resource guide for caregivers.
Help for Cancer Caregivers: A personalized self-care web tool for caregivers. Developed by CancerCare, Michigan State, Indiana University, Caregiver Action Network and Wellpoint.
Lotsa Helping Hands/ABTA
My Caring Link web tool is a collaboration of the American Brain Tumor Association and Lotsa Helping Hands. Visit, www.lotsahelpinghands.com. This site helps you organize support and assistance among friends and family, on behalf of your loved one.
Medicare's Home Health, Hospice, Durable Medical Equipment and Skilled Nursing Facility Locator
Get information at Medicare's website.
This non-profit organization provides listings of available prescription assistance programs. They have a prescription assistance programs database on the website.
Caregiving resources provided by Beth Israel University Hospital/Albert Einstein College of Medicine.
The information and resources listed here are not intended to be an endorsement, nor are the listings all-inclusive. The resources are provided in hopes that they provide direction as you begin your search for support. Please check with the individual agencies for updated information.
This information is for educational purposes only and is not intended to replace the advice of your doctor or health care provider. We encourage you to discuss with your doctor any questions or concerns you may have.